Kyra has been complaining of her legs itching when she stands. Her legs seem to be fine as long as she is moving around. With prolonged standing, her legs go numb and actually turn colors, sometimes red, sometimes a purple/blue color. After many doctor visits and lots of "I don't know why she is having this problem" answers we ventured back to the doctor again. This time the answer we recieved was liver and kidney function tests, CT scan arteriogram of the lower extremities and Ankle-brachial index tests to rule out vascular problems. As you probably already know the internet can be a wealth of information and also a hinderence. If you search for ABI test you will find that it is the number one test for Peripheral Artery disease. So here we are with an active, beautiful 11-year old girl who wants to be like everyone else but has these challenges to overcome. As a mom, I just want to take all of her problems away from her and give them to myself. Instead of that option, I get to hold her hand and tell her how prooud I am of her and that we will get through this together! It is one of the hardest jobs that I have had, to be strong for her knowing that inside I am terrified for her! Throughout all of this her only concern has been to help others with Addison's so that they have a chance not to have as many challenges as we have had even though I know that we have it really well compared to others with Addison's disease.
I guess that I have rambled enough for one night. I know that God has her in his hands and has been carrying her for her entire life and will continue to carry her and us through this.
I guess that I have rambled enough for one night. I know that God has her in his hands and has been carrying her for her entire life and will continue to carry her and us through this.